Caregivers are the cornerstone of lioedema patients, they offer their assistance in daily activities, help with lipoedema management, are great company and offer emotional support. On the other hand, caregivers also need rest. They can prevent fatigue while supporting you by learning how to take care of themselves (their own physical and mental health)  through practical strategies such as scheduling regular breaks, setting boundaries, seeking social support, and practicing stress-reduction techniques. Let´s have a closer look…

Tips to prevent caregivers fatigue

1. Sleep well to feel well: adults need 7-8h of good quality sleep (non interrupted)to feel rested in the morning.
2. Proper nutrition: if you follow the same lipoedema specialised diet, you can be sure your nutrition will be balanced or visit a nutritionist to tailor your diet plan according to your specific needs and dietary preferences (vegan, vegetarian, etc.).
3. Move your body: exercise is pivotal for all of us. You can share exercises with the person you are taking care of or save time to do your own workout.
4. Schedule regular breaks to recharge yourself.
5. Take caregiver duties and schedule them to share with other volunteers.
6. Now your own limits. say no if you feel exhausted or overwhelmed, pay attention to your own needs. 
7. Share with other caregivers: joint support groups to connect with people who are living the same experience you are. It is a wonderful tool to make new friends, share tips, get advice, etc.
8. Avoid burnout: Pay attention to early signs of fatigue, irritability, mood changes, etc., and get rest.
9. Be kind to yourself and with the person you are taking care of. Kindness is the revolutionary act of love. 
10. Don’t forget your own medical needs. Take care of your physical and mental health, keep in mind your own medical appointments.

Find your daily balance

• Practice a hobby or leisure activity regularly outside caregiving tasks.
• Get stress relief: practice relaxation techniques like yoga, mindfulness, deep breathing.
• Journal: it helps to express and process caregiving emotions and challenges.
• Ask for help: openly communicate your needs with family, friends, professionals or colleagues.

By integrating these self-care strategies, caregivers can keep their health in balance and improve compassion, which is essential for providing effective care to themselves and others without succumbing to fatigue or burnout. Remember to treat you right, be kind to your mind and treat others better.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://lipoedema.co.uk/

https://www.nhs.uk/conditions/lipoedema/

https://www.lipedema.org/

https://www.talklipoedema.org/

https://www.bupa.co.uk/health-information/womens-health/lipoedema

The post Lipoedema and caregivers: How to take care of themselves appeared first on Perea Clinic.

The role of oestrogen in lipoedema´s exacerbation of symptoms is pivotal. For that reason, it  is key to maintain your oestrogen levels on balance (ERa and ERb). As all we know, most lipoedema patients are women and oestrogen levels change during puberty and menstrual period (periods of hormonal changes), but it dips drastically during menopause, so lipoedema symptoms might increase complicating the condition. Balancing estrogen levels naturally can be approached through diet, lifestyle changes, and certain supplements (when prescribed) that support your body’s hormone balance effectively and safely.

Balancing oestrogen: What is Oestrogen?

It is a hormone (seen in women and men) produced in more quantity in female bodies. The ovaries, adrenal glands and fat tissues produce this hormone in women. It has a key role in:

• Fat accumulation and distribution
• Sexual and reproductive health
• Cognitive health
• Bone health
• The function of the cardiovascular system
• Central nervous system
• Cholesterol levels
• Blood sugar levels
• Bone and muscle mass
• Circulation and blood flow
• Collagen production and moisture in your skin
• Brain function, including your ability to focus

What are the signs of oestrogen imbalance?

Some of the main symptoms are:

• Weight gain, specially in belly and lower part of the body
• Uneven fat accumulation
• Dry skin
• Tender breasts
• Changes in bone density (weakness)
• Lack of focus
• Mood changes
• Irritability
• Vaginal dryness
• Hot flashes and night sweats
• Irregular periods or no periods 
• Headaches before or during your period
• Decreased sex drive
• Painful intercourse
• Insomnia
• Fatigue

What causes oestrogen imbalance?

Main causes are:

• Age. Estrogen levels decrease during menopause.
• Eating disorders (bulimia and anorexia) deprive your body of nutrients needed for hormonal production and balance.
• Genetic conditions.
• Autoimmune diseases. 
• Premature menopause (ovarian insufficiency).
• Cancer treatment in ovaries.
• Pituitary gland conditions. Your pituitary gland secretes hormones that tell your ovaries to start making estrogen, if not there will be imbalances.
• Hypothalamic amenorrhea. If your body is stressed your brain doesn’t release enough of the hormone that activates estrogen production in your ovaries.

Balancing Oestrogen Naturally: Natural Oestrogen Suppliers

Start a high phytoestrogen diet

Incorporate foods high in phytoestrogens. They are plant compounds that mimic estrogen in the body, the most known are:

• Flaxseeds. They contain lignans, polyphenols- a type of phytoestrogen, that may aid estrogen metabolism. This seed is also linked to lower cancer risk. Use it in all your preparations like smoothies, salads, bread, cookies, etc.
• Soy derived products. For example tofu, edamame, tempeh, soy milk, etc., are rich in isoflavones (phytoestrogen).  It is a good substitute for meat for vegan or vegetarian people. Soy also reduces risk of prostate and breast cancer. Include it to your meals as preferred.
• Peaches. High in lignans (polyphenols), but remember they are high in fructose (fruit sugar), so eat them with moderation.
• Cruciferous and green vegetables. High in phytoestrogens and have anti-cancer and anti-inflammatory properties. Consume them daily to lower inflammation related diseases and chronic conditions.
• Fruits. Berries, pomegranates and apples also have these compounds.
• Legumes. Also a phytoestrogen provider that can replace meats in some types of diets. (always advised by a nutritionist).
• Nuts: Pistachios, almonds, cashews, peanuts. Great also for heart health. They are also high in Omega 3 fats and can be consumed daily, but with moderation. 
• Sesame seeds. You can add it to any of your meals. High in antioxidants, they also improve your cholesterol levels and reduce risk factors for chronic conditions.
• Garlic. A super food. it helps to balance oestrogen; in addition, it lowers cholesterol, reduces blood pressure, prevent clots and reduce bone loss related to age).
• Whole grains. Oats, barley, and wheat germ are great sources of lignans.

Balancing oestrogen: lifestyle changes

• Keep your cortisol in line (stress hormone). Stress disrupts oestrogen and body balance, causing chronic inflammation. To contrast it, you can include in your daily life activities like, meditation, mindfulness, walk in nature, relaxing activities you enjoy.
• Healthy weight. Underweight and overweight can negatively impact oestrogen production and balance, remember  your fatty tissues store part of your oestrogen (more fat, more place to store and vice versa).
• Exercise. Aerobic exercises and strength exercises, which have been shown to help boost estrogen levels and overall hormone health.
• Avoid smoking, which can reduce estrogen levels and is dangerous for your overall health.
• Sleep well. It supports your hormone regulation.

A final word

Oestrogen is a cornerstone hormone for lipoedema patients, keeping it in balance can release symptoms and avoid progression. The incorporation of phytoestrogen rich food and lifestyle changes will improve your oestrogen levels and overall health.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://www.frontiersin.org/journals/endocrinology/articles/10.3389/fendo.2022.951186/full

https://my.clevelandclinic.org/health/diseases/22354-low-estrogen

https://www.webmd.com/diet/foods-high-in-estrogen

The post Oestrogen and Lipoedema: Balancing Oestrogen Naturally appeared first on Perea Clinic.

Lipoedema is a chronic condition. Its main characteristic is disproportionate and painful accumulation of fat deposits, primarily in the lower body, but also seen in arms. This condition affects more women than men, almost 11% of women worldwide have it and is often associated with hormonal changes (e.g. during puberty, pregnancy, or menopause). Among the various hormones implicated, oestrogen plays a pivotal role in the development and progression of lipoedema, influencing fat distribution, accumulation, and related metabolic processes. Let´s have a closer look…

What is Oestrogen?

It is a hormone (seen in women and men) produced in more quantity in female bodies. The ovaries, adrenal glands and fat tissues produce this hormone in women.

The majority of people know oestrogen for its role in female sexual and reproductive health, however it also has a pivotal role in processes like:

• Cognitive health
• Bone health
• The function of the cardiovascular system
• Central nervous system
• Cholesterol levels
• Blood sugar levels
• Bone and muscle mass
• Circulation and blood flow
• Collagen production and moisture in your skin
• Brain function, including your ability to focus
• Fat accumulation and distribution 

Understanding Estrogen’s Role in Fat Acumulation and Distribution

Estrogen is a key regulator of adipose tissue metabolism. It also regulates where fat is stored on the body and how fat cells function. As women create more oestrogen levels, it promotes fat accumulation in subcutaneous deposits, especially in hips, thighs, and buttocks. For that reason, women are prone to be curvy. 

Scientific evidence shows that oestrogen promotes fat accumulation specifically in these lower body regions when oestrogen receptors (ER) located on fat cells are binded. These receptors are ERα (estrogen receptor alpha) and ERβ (estrogen receptor beta);  their imbalance causes fat accumulation and inflammation (increased ERα to ERβ ratio). 

Alterations in the ratio of these receptors, particularly an increased ERα to ERβ ratio, may contribute to excessive fat growth and fat cell dysfunction seen in lipedema.

How oestrogen imbalance influences lipoedema?

Research shows different ways in which oestrogen contributes to lipoedema, these are:

1. Modifications in oestrogen receptor signal; In other words, changes in the distribution and function of oestrogen receptors on adipocytes can modify how fat cells respond to hormonal signals. When ERα levels are higher than ERβ, it triggers abnormal signaling that promotes fat cell growth, inflammation, and impaired fat breakdown, leading to hypertrophy (enlargement) of fat cells prevalent in lipoedema.
2. Local oestrogen production and metabolism; that is to say, fat cells themselves can also produce oestrogen through enzymatic processes, creating local high concentrations of oestrogen in affected tissues. This over production (production in ovaries and in fat cells)  exacerbates fat accumulation and inflammation, worsening lipoedema progression.
3. Influence in protein expression-peroxisome proliferator-activated receptor gamma (PPARγ)-alteration in this protein leads to fat cell formation and lipid storage.

Clinical findings

• Lipoedema affects more women than men, often manifesting or worsening in periods of hormonal fluctuation, e.g. puberty, pregnancy, and menopause; periods where estrogen levels change. 
• Excess in oestrogen receptors (ERa and ERb) or imbalance blocks signal onto fat cell receptors in these sensitive areas, triggering the abnormal fat accumulation.
• Oestrogen fluctuations start inflammatory processes in:  fat tissues, surrounding connective tissues, blood vessels, and skin, allowing lipoedema progression.
• Inflammation response is influenced by oestrogen in two ways: 

It can reduce and also increase immune responses depending on context (stress factors, hormonal stage, problem in signal reception, etc. ). So, overproduction of oestrogen is directly linked with chronic inflammation in lipoedema.

A final word…

• Oestrogen significantly influences fat distribution by promoting subcutaneous fat accumulation in the lower body, the signature of lipoedema. 
• Disruption in oestrogen receptor signaling and local estrogen production within fat tissue leads to pathological fat growth, inflammation, and symptoms characteristic of lipoedema. 
• Understanding how hormones influence lipoedema gives health professionals and therapists lights for targeted therapies, addressing oestrogen pathways to mitigate disease progression.
• Hormone balance is pivotal in all your metabolic processes. So hormonal measure and modulation, plus diet, exercise, hands on treatments, etc., are pivotal for a tailored lipoedema treatment. 

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://www.journaljammr.com/index.php/JAMMR/article/view/5731

https://www.medicalnewstoday.com/articles/277177#sources-and-uses

https://pmc.ncbi.nlm.nih.gov/articles/PMC4192010/

https://www.sciencedirect.com/science/article/abs/pii/S0306987714002953

https://pmc.ncbi.nlm.nih.gov/articles/PMC4192010/

https://pmc.ncbi.nlm.nih.gov/articles/PMC8583809/

https://labordoc.ilo.org/discovery/fulldisplay?docid=alma995221789002676&context=L&vid=41ILO_INST:41ILO_V1&lang=en&search_scope=MyInst_and_CI&adaptor=Local%20Search%20Engine&tab=Everything&query=sub,https://pmc.ncbi.nlm.nih.gov/articles/PMC8583809/equals,%20Estrogen%20&offset=0

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Lipedema is a chronic, yet underdiagnosed or misdiagnosed as obesity, subcutaneous adipose tissue (SAT) disorder. The main characteristics are abnormal fat accumulation and expansion in the lower extremities and arms, pain, swelling, and tenderness to palpation. Advance stages of lipoedema, significantly, reduce patients ‘quality of life. For that reason, it is key to create a tailored treatment to improve symptoms and avoid complications. As traditional weight loss strategies often fail to address lipoedema, many seek alternative dietary approaches. Recent research has explored the potential benefits of ketogenic, carnivore, and low-carb diets for managing lipoedema symptoms, let’s have a closer look…

Understanding Lipoedema

Symptoms

Some of the main symptoms are:

• disproportionate fat accumulation in the lower body (but it could happen also in arms)
• pain 
• tenderness
• swelling 
• easy bruising
• tendency for symptoms to worsen after activity or in warm weather
• progressive disorder, if not treated on time

Causes

The exact cause is unknown, however, experts think that  hormonal and genetic factors are crucial. Lipoedema predominantly affects women, often starting or worsening during hormonal changes such as puberty, pregnancy, or menopause.

Best diet for lipoedema: Ketogenic (Keto) Diet 

What is the Ketogenic Diet?

It is a high-fat (good fats), low-carbohydrate diet that induces ketosis; a metabolic state, where the body burns fat for fuel instead of carbohydrates.

Study findings

• Multiple studies and systematic reviews have shown that ketogenic diets can lead to significant improvements in lipoedema symptoms, for example:
  • Weight loss and fat reduction: Patients showed reductions in body weight, fat mass, and specifically subcutaneous adipose tissue in affected areas.
  • Symptom relief: Participants reported less pain, swelling, heaviness, and fatigue. The ketogenic diet was found to be more effective than standard low-calorie or low-fat diets in improving these symptoms.
  • Quality of life: Improved overall well-being and mobility were noted, likely due to reduced inflammation and fat accumulation.

• In an 8-week study , a high-fat ketogenic diet led to greater reductions in limb circumference and symptom severity compared to a low-carb but higher-carb control diet.
• There is high evidence of the efficacy of ketogenic diet as a promising nutritional intervention for lipoedema (always guided by a professional).

Best diet for lipoedema: Low-carb diets 

What is a Low-Carb Diet?

This type of diet typically involves restricting carbohydrate intake to 75 grams or less per day, with moderate protein and higher fat intake.

Study findings

• A Norwegian study, randomised women with lipoedema to a low-carb (75g carbs/day) or control diet (180g carbs/day), both calorie-restricted. Only the low-carb group saw significant reductions in calf fat tissue, circumference, and pain after 8 weeks.
• Both groups lost weight, but the low-carb group had greater improvements in lipoedema-specific symptoms.
• The mechanism behind pain reduction is not fully understood (they still don´t know how it works), but it seems to be linked to decreased inflammation and changes in fat metabolism.

Best diet for lipoedema: Carnivore Diet 

What is the Carnivore Diet?

It is an extreme form of low-carb eating, consisting solely of animal products (meat, pork, chicken, fish, eggs), with virtually zero carbohydrates.

Considerations

• There is limited direct research on the carnivore diet and lipoedema.
• Anecdotal reports suggest some individuals experience reduced inflammation and improved symptoms, but the diet’s high sodium content may increase the risk of edema (fluid retention), especially during the adaptation phase.
• Electrolyte imbalances (particularly sodium, potassium, and magnesium) can occur, potentially exacerbating swelling.
• Medical supervision is strongly advised, as the diet may not be suitable for everyone and long-term effects are not well studied.

Best Diet for Lipoedema: Summary table

What to eat instead of carbohydrates? Some ideas for your shopping list

You can replace refined products, sugar and carbohydrates for low- carbohydrate vegetables and low fructose fruits that do not produce inflammation. For example:

• Drink plenty of water, instead of sugary beverages. If you don’t like water, just add some drops of lemon to give it taste. Cold tea and  infusions made with fruits or herbs are excellent options, too.
• Peppers, hot peppers and jalapeños.
• Zucchini
• Avocado
• Olives
• Cauliflower
• Asparagus
• Broccoli
• Mushrooms
• Cucumber
• Green beans
• Aubergine
• Tomatoes
• Jicama (Mexican turnip-Mexican potato)
• Radishes
• yellow turnip (neep)/ white turnip (swede)
• Brussels sprouts
• Celery
• Okra
• Lettuce
• Spinach
•  Arugula
• Escarole
• Dark chocolate (best 100% cocoa)
• Nuts
• Seeds
• All types of berries

Veggies to avoid: because they are high carbohydrates

• potatoes and sweet potatoes
• onions ( just in large amounts)
• certain winter squashes, such as acorn squash and butternut squash
• corn
• beets

To keep in mind

• Consult a Healthcare Provider before starting any restrictive diet, especially with a chronic condition like lipoedema, consult your GP´,  a registered dietitian and your lipoedema therapist.
• As you reduce or avoid carbohydrates, you should introduce other non-inflammatory products like veggies, fruits, spices and herbs to get all nutrients your body needs for its daily functions.
• Monitor your symptoms. Use a journal to monitor how dietary changes affect your pain, swelling, and quality of life, so you can report them to your lipoedema team.
• Consider individual tolerance: Not all diets suit everyone; what works for one person may not work for another, you are unique. For that reason, tailored treatments are key.
• Monitor for side effects: Watch for signs of electrolyte imbalance, increased swelling, or other adverse effects, particularly with very low-carb or carnivore diets.

A final word

Emerging research supports the use of ketogenic and low-carb diets as effective strategies for managing lipoedema symptoms, including pain and swelling, and for improving quality of life. The carnivore diet remains experimental, with limited evidence and potential risks. Dietary changes should always be personalised and supervised by healthcare professionals to ensure safety and effectiveness. If you have any questions about it, please, feel free to ask. We are always glad to help.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://pubmed.ncbi.nlm.nih.gov/39574523/

https://www.onlinescientificresearch.com/articles/lipedema-and-nutrition-high-fat-ketogenic-diet-as-treatment-of-choice.pdf

https://pubmed.ncbi.nlm.nih.gov/39574523/

https://discover.texasrealfood.com/carnivore-diet/edema

The post What is the Best Diet for Lipoedema? appeared first on Perea Clinic.

Most  people defined lipoedema as a chronic condition, characterised for the abnormal buildup of fat. For millions of women (the most affected population) worldwide, it brings a daily struggle with pain, swelling, discomfort  and mobility. However, lipoedema is far more than just a physical condition. Everyday, patients deal with mental health challenges like anxiety, depression, and frustration. For that reason, it is key to understand and address both, the physical and emotional impact of lipoedema, in order to improve the general well being of each patient. Let’s see how lipoedema affects mental health of patients and how they can be helped.

Lipoedema and mental health: The emotional impact of lipoedema

As I said above, Lipoedema´s main characteristic is the abnormal accumulation of fat (resistant to diet and exercise), primarily in the legs and arms changing your body shape. Most common symptoms are: pain, swelling, easy bruising (caused by reduced lymphatic and blood flow) and reduced mobility. These physical symptoms and criticism from outsiders often lead to:

• Low self-esteem
• Body image issues
• Insecurity
• Dissatisfaction
• Stress
• Emotional exhaustion
• Social isolation 
• Anxiety 
• Frustration

Anxiety in lipoedema

Anxiety and lipoedema come together. The uncertainty of the condition, spending time in the right diagnosis, then worries about progression, low self-esteem and fear of how others perceive you can create a constant state of apprehension. For those who don´t get s psychological help, this anxiety becomes generalised and persistent, leading to:

• exacerbation of physical symptoms
• Sleep disturbances
• Overactive “fight or flight” response
• Worries about treatment, costs, and future
• etc.

Depression and hopelessness

More that 40% of patients with lipoedema experience depression, with rates increasing as the condition progresses or mobility declines. Some common symptoms of depression are:

• Persistent sadness or hopelessness
• Loss of interest in activities
• Frequent crying and irritability
• Feelings of inferiority and shame
• Difficulty managing daily self-care and treatment routines
• Isolation
• Ruminative thoughts about the condition or others opinion
• Sleep issues

Lipoedema patients manifest a profound sense of loss (of physical ability, social life, or self-image), especially when compounded by repeated misunderstandings from medical professionals or loved ones.

Frustration and anger

Many people with lipoedema describe intense frustration in the following areas:

• Their bodies (inability to lose lipoedema fat)
• Healthcare systems.  Late/misdiagnosis and dismissal by doctors are common, leading to feelings of not being heard or believed and catalogued as lazy.
• Social stigma. people´s misunderstanding about the condition, discrimination and criticism produce further self-isolation.

What comes next? Reducing the emotional toll of lipoedema

Building emotional resilience

Even mental health challenges of lipoedema have high impact on people, there are strategies that can help:

• Professional psychological support: Therapy, especially from professionals familiar with chronic illness, can provide coping strategies and validation.
• Peergroups. Connecting with others who share your experiences can reduce isolation, create new true friendships/relationships and offer practical advice.
• Mindfulness and self-compassion. Mindfulness, gratitude journaling, meditation and pray improve emotional regulation.
• Set goals. Small, realistic, achievable self-care goals can build confidence and a sense of control improving your self-esteem.
• Advocacy and education. Learning about lipoedema and advocating for yourself in medical settings can empower you and improve outcomes.

Lipoedema and mental health-A final word:  Remember you are Not Alone

Living with lipoedema is a journey that affects both body and mind, but in this path you can’t decline. Don’t be ashamed to show your feelings and worries with health care professionals and loved ones. If you are struggling with anxiety, depression, or frustration is totally normal and you can seek emotional support from therapy, support groups, or trusted friends.  All these tools can make a significant difference in your quality of life and help you build resilience and a strong self-esteem for the road ahead.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://lipoedema.co.uk/emotional-support/

https://pmc.ncbi.nlm.nih.gov/articles/PMC9602978/

https://lipedemaclinic.org/article/mental-health-and-support-for-lipedema/

The post Lipoedema and Mental Health: How to deal with Anxiety, Depression, and Frustration appeared first on Perea Clinic.

Living with lipoedema is not easy and can be isolating due to society misunderstanding, but let me tell you my dear friend, you are not alone! There are networks of support communities and resources, outside, to empower you as patient, offer guidance, and promote connection with health care providers, peers and also, help caregivers to get support and advice, too. So, in this blog, I show you how to find the help and understanding you deserve.

Why should I find support?

Because lipoedema affects both physical and mental health. Symptoms like pain, swelling and mobility issues (advance stages) might highly affect your quality of life. Besides, many patients experience emotional challenges, such as low self-esteem, anxiety, depression and frustration due to misdiagnosis, lack of understanding or being judged by family, friends and society. For that reason, connecting with others who walk on the same path, allows you to share experiences and get advice, assistance, validation, have hope and make new friends.

How can I get in touch with other lipoedema patients?

There are online communities and support groups

Social Media Groups

• Instagram
• Youtube
• Facebook
• Ticktock

First,search for Lipoedema (remember it can also appear as lipedema for American English speakers) to find active groups. There patients share stories, advice, and have the opportunity to encourage each other.

Once you find an account (fundations, advocacies, influencers) you feel comfortable with, follow them for the updates news and community stories.

Specialised online-platforms that give physical and emotional support

Here, I mention 3 of the most known in UK, but also, in references you can find more society and specialised platforms ( just click below):

• Lipedema Support Community. It offers a safe space to connect, share experiences, and access educational webinars, etc.
• Lipedema Team Community. Provides monthly sessions on nutrition, mental health, and treatment options, plus access to specialists and peer support.
• Talk Lipoedema. This charity is located in the UK and gives support to patients, families, and caregivers with information, newsletters, and real-life stories.
• Fat Disorders Resource Society (FDRS). Hosts annual conferences and maintains a supportive online presence for those affected by fat disorders, including lipoedema.

Where can I seek information about lipoedema?

The are informational guides or online libraries

• Lipedema Foundation. It has a comprehensive resource library, downloadable guides, and a patient self-advocacy toolkit to help navigate the healthcare system.
• Lipoedema UK. Here, you can find medical resources, research archives, and best-practice guidelines. It offers material for clinicians and lipoedema therapists, too.
• LEGATO Library.  An up-to-date archive of research publications, making scientific data more accessible to patients.

How can I find professional help?

• Provider Directories. The Lipedema Foundation and affiliated organizations maintain directories to help patients find knowledgeable clinicians and therapists.
• NHS. It gives you information about the condition and related professionals.
• National Lymphedema Network Offers listings of certified therapists specialized in lymphatic and fat disorders.

What about learning more and advocating yourself

Here are some options for you, but there are a lot more online.

• Webinars, talks and masterclasses. Many communities around the world offer regular online events covering self-management, treatment options, and coping strategies. They are available in different languages.
• E-Learning Courses. Lipoedema UK and the Royal College of General Practitioners provide online courses for patients and healthcare professionals.
• Peer Stories. Books or talks about others’ journeys can be deeply reassuring. You can find them in different foundation websites. There you can also look for testimonies, photo galleries, forums and interviews that highlight the diverse experiences of those living with lipoedema.

A final word…

Finding the right support system is pivotal for managing lipoedema (clinicians, lipoedema therapist, psychologist and family, friends and peers). Support groups, specialised webpages and lipoedema communities help you:

• get new knowledge about the condition
• feel supported which gives you strength
• have a sense of belonging
• be updated in latest news and treatments
• self advocacy

Remember you are not alone on this journey, feel free to contact us whenever you need, we are always glad to help!

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

Supper groups and information:

https://www.lymphoedema.org/information/lipoedema/

https://lipoedema.co.uk/research-publications-and-projects/

https://www.nhs.uk/conditions/lipoedema/

https://www.talklipoedema.org/

https://www.lipedema.team/community

https://lipedemaproject.org/lipedema-support-community/

https://www.lipedema.org/resources

Library: https://www.fatdisorders.org/

The post Finding Support: Lipoedema Communities and Resources for Patients appeared first on Perea Clinic.

What is lipoedema?

Lipoedema is a rare, chronic condition. Its main characteristic is the large buildup of subcutaneous fat in legs or arms. Most seen in women, but there are a few cases reported in men. The condition has more prevalence in family members (it seems to be genetic) and according to the reported cases till today, it affects 11% of women worldwide.

What is liposuction?

Liposuction  is a surgical procedure designed to remove unwanted fat deposits from specific areas of the body. It, also, improves the contour and shape of the body. Remember that it is not a weight-loss method or a cure for lipoedema. After lipo, lipoedema patients have to keep implementing traditional treatments and lifestyle changes in order to continue managing symptoms and avoiding the progression of the disease.

What comes first in lipoedema management?

Before considering surgery, your lipoedema team (clinicians, surgeon,  therapist, etc.) will advise you to try conservative therapies, these are:

• CDT (Complete Decongestive Therapy)
• Compression garments
• Manual lymphatic drainage
• Physical therapy
• Healthy targeted diet 
• Exercise
• Orthopaedic consultation and therapy if needed

These approaches can help manage many symptoms like pain, swelling and discomfort, however, they don’t address the underlying fat deposits.

When is liposuction the best choice for lipoedema management?

Liposuction is considered the best option for managing lipedema symptoms when conservative treatments cannot control the progression of the condition or late diagnosis in severe cases. On the other hand, liposuction can be used at any stage of the condition. Some key factors that let you know liposuction might be the right choice are:

• Persistent pain (chronic)
• Discomfort and pressure sensation  (chronic)
• Reduced mobility (impair walking, difficulties in daily activities)
• Daily function issues
• Disease progression 
• Late diagnosis (severe cases, but the patient should be in good health, remember it is a surgery and has risks).
• Patient and surgeon agreement ( if you want to start with this option and your surgeon agrees, but remember that after the procedure you have to continue with traditional methods as lipoedema symptoms management treatment. Liposuction is not a cure).
• When conservative methods fail. If non-surgical treatments fail, surgical intervention becomes a logical next step to stop symptoms progression. Although, after lipo, you ought to continue with lipoedema treatment (CDT, MLD, exercise, diet, etc.) to keep symptoms in line. 

What are the benefits of liposuction in lipoedema management?

Liposuction has long lasting benefits for lipoedema patients. Follow up studies showed 12 years of symptom relief after lipo, but it is not a cure. Some benefits of lipo are:

• It can provide significant relief by reducing the volume of diseased fat deposits. 
• Alleviate nerve and lymphatic compression.
• Restore mobility and improve quality of life.
• Helps in body reshaping (improving self-image and self-esteem).
• Help slowing down or avoid the progression of lipoedema.
• Preventing further fat accumulation and tissue changes  (when accompanied with traditional treatments).

Lipoedema management needs an integrative treatment where different disciplines including surgery get together to keep symptoms in line and avoid disease progression. Talk to your lipoedema team in order to tailor the best treatment option according to your needs, and remember to stay where you are treated better!

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://pmc.ncbi.nlm.nih.gov/articles/PMC10379396/

https://www.ncbi.nlm.nih.gov/books/NBK545818/

The post Liposuction and Lipoedema: When is it the right choice? appeared first on Perea Clinic.

Lipoedema is a chronic condition and its main characteristic is the abnormal buildup of fat deposits (resistant to exercise and diet). Most seen in legs and sometimes arms. Other symptoms are: pain, swelling, easy bruising and reduced mobility (in advanced stages). Lipoedema has no known cure yet, however, there are treatments focused on managing symptoms and improving quality of life from 1 to fourth 4 stages; besides, liposuction which is suggested for specific cases (link liposuction and lipoedema blog). Once patients get their lipoedema diagnosis, they and clinicians often deal with a critical decision: Non-Surgical Treatments vs. Surgery- What works best for lipoedema? Let´s have a closer look…

What are the stages of lipoedema?

• 1: Skin is smooth, but you may feel little nodules underneath.
• 2: Skin becomes uneven, with visible indentations and larger palpable nodules.
• 3: Large, lobular fat deposits cause visible deformity and may severely impact mobility.
• 4: Secondary lymphoedema develops (because fat nodules blockage lymphatic circulation), leading to additional swelling and complications.

What work best for lipoedema: surgical and non-surgical treatments treatments

Non-Surgical Treatments: First-Line and Foundational Care

Non-surgical (conservative hands-on treatment) therapies are the first step and foundational care (even after lipo) in managing lipoedema’s symptoms. They are:

• Manual Lymphatic Drainage (MLD): this specialised massage technique reduces swelling, boosts your immune function while increases lymphatic and blood flow and improves your general wellbeing.
• Compression therapy: Compression garments (socks, pants, sleeves, etc.) help reduce pain, swelling, and discomfort while supporting mobility.
• Physiotherapy and exercise: Gentle movement (supervised exercises) and physiotherapy  improve mobility, general well-being and support weight management. Even though lipoedema fat is resistant to diet and exercise, a tailored treatment might avoid progression and reduce symptoms.
• Weight management: while losing weight may not reduce lipoedema fat; however, when you maintain a healthy weight, it helps manage symptoms and prevent complications and disease progression.
• Skin care: Regular moisturising protects skin from rash, cuts and stress due to compression garments.
• Psychological support: your mental health is crucial, as depression and anxiety are common among lipoedema patients due to self-image and social criticism issues.

This tailored holistic treatment can significantly improve quality of life, manage symptoms and avoid advanced stages for many patients. However, not always conservative treatments do not reverse or stop the underlying fat accumulation, and some patients eventually find their symptoms progress despite best efforts (Don’t blame yourself, keep walking and never give up!).

Surgery: Is it necessary and effective?

Liposuction is the most studied surgical option for severe cases of lipoedema. It physically removes abnormal fat tissue, offering relief from pain, improved mobility, and a reduction in the need for compression therapy. Key findings from recent studies include:

• Long-term benefit. A 12-year follow-up study found that improvements in pain, swelling, bruising, and mobility persisted over time, 
• Quality of life. Patients report improvement in quality of life, less reliance on compression therapy, and improved self-image/esteem.
• Safety. There are few adverse effects, especially when performed with modern techniques like wet-jet assisted liposuction, which minimises damage to lymphatic vessels.
• Limitations. Liposuction is recommended for severe cases, patients who do not respond adequately to conservative management by itself. Remember that for those undergoing liposuction traditional therapies will be part of their daily care treatment, too. 

Non-Surgical vs. Surgery-Liposuction

A final word

As in most chronic conditions, there is one-size-fits-all treatment. Non-surgical treatments are effective for a lot of patients (especially in early or mild cases) and should always be the first line of management. On the other hand, surgery, particularly liposuction, is the suggested next step for those with persistent, life-limiting (mobility) symptoms who do not get adequate relief from conservative therapies. However, remember that after liposuction, patients should continue with their lipoedema tailored symptoms management treatment (includes conservative therapies). The best outcomes and quality of life are achieved with a personalised, holistic approach always assisted by your lipoedema team.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://pmc.ncbi.nlm.nih.gov/articles/PMC11219175/

https://lipoedema.co.uk/wp-content/uploads/2021/07/Baumgartner-12-year-follow-up-after-lipo.pdf

lipoedema.uk

https://pubmed.ncbi.nlm.nih.gov/34871293/

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Living with lipoedema is challenging, especially the first part when you try to seek the right diagnosis and effective treatment. Many patients face years of misdiagnosis, dismissal, or misunderstanding from healthcare providers. However, you can take steps to advocate for your health and ensure your concerns are heard. Here’s how to approach the conversation with your doctor in order to design the best treatment option according to your needs. Let´s have a closer look on how to rtalk to your doctor about lipoedema…

What is Lipoedema?

Lipoedema is a chronic condition. Its main characteristic is the abnormal build-up of fat that doesn´t respond to diet or exercise; it usually presents in the legs and arms, sparing the hands and feet. Most common symptoms are: pain, tenderness, swelling, and easy bruising. Lipoedema is frequently mistaken for obesity or lymphedema. Early recognition and management can significantly improve outcomes and quality of life.

How to get ready for your appointment1

1.Gather information and all documents you might need

• Write a symptoms diary: write down when your symptoms began and all changes (what essays symptoms, what makes them worse) that you have noticed till the appointment.
• Bring your medical history with you, even if there were misdiagnosed conditions like obesity or lymphoedema.
• Talk to your family and collect symptoms history. This type of chronic condition often runs in families, so note if relatives have or had it.

2.Book the appointment with a specialist (lipoedema or cardiovascular specialist)

• Use your appointment to discuss lipoedema, rather than bringing it up during a visit for another issue. This ensures you have enough time to cover your concerns.
• Once the appointment is over and if you feel not satisfied or that there is lack of information, schedule another appointment for a more thorough discussion.

3.Take a relative or friend with you

• Consider bringing a support person, such as a friend or family member. They can provide emotional support and help you communicate your concerns and also their own about the condition.

Lipoedema: How to Talk to Your Doctor About Lipoedema

1. Describe your symptoms

• At the beginning of the appointment, your specialist will ask you about your general wellbeing, clinical history and current symptoms-explain your symptoms in detail, including pain, swelling, bruising, sensitivity, and how these affect your daily life.
• Mention if your symptoms have not improved with standard weight-loss methods like exercise and diet and specify what kind of exercises and for how long have you been performing them, same with diet (type of diet, food you avoid, hydration, give all details).

2.Express Your Concerns and Goals

• Tell how lipoedema impacts your general wellbeing (physical and mental health).
• Share your goals for diagnosis, symptom management, and quality of life.

3.Write down specific lipoedema questions, so you won´t forget to ask during the consultation

• “Are these symptoms of lipoedema…?”
• “Could this be lipoedema, and what makes you think so?”
• “Can you refer me to a specialist familiar with lipoedema?”
• “What treatment options are available, and what are their pros and cons?”
• “Are there resources for mental health support? “
• “Do you know any support groups?”
• etc.

4.Advocate for Yourself

• If you feel dismissed or not taken seriously, respectfully restate your concerns and ask for a second opinion or referral. There are many specialists, always look for that one who treats you better.
• Remember, you deserve to be listened to with respect and without bias or stereotypes.

It is Lipoedema: What´s next?

After getting the right diagnosis

• Your doctor may assess your symptoms and refer you to a specialist, such as a vascular specialist and certified lymphoedema therapist.
• Early diagnosis can help you and your support network understand and manage the condition.

Treatment options

There is no cure, however, available treatments help manage symptoms, prevent progression and improve your general well being

• Manual lymphatic drainage (specialised massage by a certified specialist)
• Compression garments or bandages
• Low-impact exercise programs
• Nutrition guidance
• Counseling or psychological therapy
• Support groups for you and your relatives
• Liposuction for severe cases (may not be available everywhere)

What to expect: your rights as patient

• You have the right to a timely diagnosis and access to appropriate care.
• Care should be individualised and involve open dialogue between you and your health care providers.
• If your providers (GP, lipoedema therapist or psychologist) are not responsive or respectful, seek another opinion or change for another professional who you feel comfortable with.
•  Support groups and online communities can offer additional resources and advice.

In short: tips to have a successful conversation

• Be prepared and organised.
• Bring someone with you for support.
• Use clear, specific language about your symptoms and concerns.
• Ask for referrals and additional resources if needed.
• Don’t hesitate to seek a second opinion if you feel unheard.

How to Talk to Your Doctor About Lipoedema: Last, but not least

Advocating for yourself is a crucial step in managing lipoedema. With preparation and persistence, you can work with your doctor to find the best path forward for your health and general well-being. Lipoedema is a chronic condition, but how you navigate through it is in your hands. Never give up!

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://www.lipedema.org/patients-bill-of-rights

https://www.nhs.uk/conditions/lipoedema/

https://cmsa.org/lipedema-a-population-health-perspective-recognizing-the-signs-and-empowering-women-with-holistic-health-assessment/

lipoedema.uk

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The emotional impact of lipoedema can´t be described with words, just those who feel it really know what it is like. This condition affects body image, self-esteem, mental health and overall quality of life. Shame, stigma, and difficulties with emotional regulation are common, especially as the condition progresses are examples of what patients have to face. In our previous blog, you can find the description of the most reported emotional issues of lipoedema patients. For that reason, today, we´ll give you proven strategies to get lipoedema emotional impact relief, always guided by a mental health professional. Let’s have a closer look…

 Emotional Impact of Lipoedema: managing strategies

• Open your mind and accept 

The more you get awareness and open your mind to embrace the condition with flexibility and acceptance you will have a better quality of life. Acceptance and Commitment Therapy (ACT) and Functional Analytic Psychotherapy (FAP) are promising approaches that target these areas.

• Mindfulness techniques

For example meditation, body scans, and deep breathing reduce stress and improve emotional regulation. These practices also enhance present-moment awareness, aiding acceptance of physical symptoms and also body image.

• Social Connectedness

Your social network and mental health professionals and support groups can buffer against feelings of isolation and improve general well being.

• Professional Support

While only about 22% of patients with advanced lipoedema report seeing a psychologist, nearly half of those who do find it helpful. Psychological interventions should be tailored to address body image, self-esteem, and coping with chronic illness. Seek a professional you feel comfortable with and who empathises with your condition.

• Empowerment and Advocacy

Empowering individuals to challenge stigma, advocate for their needs, and access appropriate care is essential for improving both mental and physical health outcomes.

Emotional Impact of Lipoedema: Empowerment and advocacy strategies

• Patient education

 Understanding lipoedema’s medical basis reduces self-blame and gives the power to look for appropriate help.

• Boundary-Setting

 Learning to establish limits with unsupportive individuals or environments preserves emotional energy, don’t waste your time with people who don’t care about you or are not empathic, and run away from those who make you feel bad about yourself.

Managing the Psychological Impact of Lipoedema: Specialised Techniques

• Cognitive Behavioral Therapy (CBT)

 CBT helps reframe negative thought patterns about body image, self esteem and more. Look for a certified CBT psychologist you feel comfortable to work with.

• Eye Movement Desensitization and Reprocessing (EMDR)

 Addressing trauma due to severe emotional impact and stigma, reducing anxiety and improving emotional resilience, must be performed by a specialised psychiatrist.

Emotional Impact of Lipoedema: Support networks

• Peer Support Groups

 Reduces isolation by connecting you with other patients. You can share experiences, get advised, but also have the feeling of belonging. Over 50% of participants report improved emotional well-being.

• Community Workshops

 Structured programs combining mindfulness, stress management, and body acceptance exercises provide tools for daily challenges. Most of them are online.

Managing the Psychological Impact of Lipoedema: A final word

The Union of these strategies is pivotal for improving your general wellbeing. Don´t be afraid of your condition or how you feel about it, but look for a professional treatment plan tailored to your needs. Remember you’re not alone and we are here to help you.

We hope this information is useful for you. If you need advice or have any questions about our treatments, please contact us. You can find us in Mill Hill Broadway and Islington. We are always happy to help. If you like this blog, please share!

References:

https://www.psychologytoday.com/us/therapy-types/acceptance-and-commitment-therapy

https://pubmed.ncbi.nlm.nih.gov/24773095/

https://pmc.ncbi.nlm.nih.gov/articles/PMC9829602/

https://etonpsychiatrists.co.uk/blog/living-with-lipedema-mental-health-adhd-links-treatment-challenges-and-the-path-to-acceptance/

https://advances.umw.edu.pl/en/article/2024/33/12/1367/

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